Tuesday, May 15, 2012

411 and 20/20 Update

We just returned from our consultation appointment with the GI Clinic at McMaster Children's Hospital. Our Dr. has more credentials than Dr. Derek Shepherd. Rylyn is booked for a gastroscopy (biopsy and visual of the small intestine) for the end of June with follow up 2 weeks later. The gastroscopy will confirm Celiac Disease as well as give more information about the severity. Now it is a waiting game. I feel better but not great. In the medical world this appointment is soon, in mommy world it is light years away.

I am waiting to hear back from our pediatrician what will be happening with her until the appointment. I am suspecting weekly weight checks and monitoring overall health (as Rylyn's immunity is down). The Dr. we saw today said Rylyn's physique and listlessness were classic symptoms, as well as, her long eye lashes. Apparently they are the only thing that keeps growing while the body is on gluten, there is no research to say why this is for sure.

Hindsight really is 20/20. I was looking back and rereading a couple of my posts related to "teething nightmares." Everything make sense now. Teeth pain was probably tummy pain. Apparently, Advil helped. Vomiting was intolerance to gluten. What did we give Rylyn when her teeth were hurting? Crackers, bread, gluten. "Easy-on-the-tummy" foods! :S This is not to say that cutting teeth do not cause pain or irritability in our children. Rylyn had teething pain before she was on solid food. It is to say, it is okay to second guess yourself or third guess yourself.

I am trying not to be too hard on myself. We have never stopped trying to be the best parents we can be. There are three things we did right: 1. We documented concerned behaviour (mainly vomiting). 2. We took Rylyn to the doctor and brought up these concerns. 3. We responded with love. I keep telling myself that God's timing is perfect. We are moving forward.

We have to keep Rylyn on gluten until her testing is done. We are purposefully poisoning and starving her. The small intestine will absorb minimal nutrients as long as she is on gluten. We watched her little tummy bloat from feeding her pasta. This is going to be the most difficult part of the process for us. On the flip side, we are trying to take in all of Addisyn's subtle daily changes. Her eyes looked much bluer than yesterday while sitting in the pediatric courtyard. When I need a smile, innocent of all that is going on, I look to her.

Bible Reflections:

"For I know the thoughts that I think toward you, says the Lord, thoughts of peace and not of evil, to give you a future and a hope. Then you will call upon Me and go and pray to Me, and I will listen to you."
-Jeremiah 29:11-12

This was the verse Chris and I selected for our wedding. God has a future and a hope for our whole family. We are to call on Him because He is listening. We will continue to pray and believe. Please continue to pray with us for Rylyn's immunity and our sanity over the next six weeks. We also believe in miracles and will be praying for healing. I feel the need to thank God for our blessings at this time: for our appointment today that was scheduled within a week (there is a 15 month waiting list), for the rush on the the gastroscopy, a pediatrician who set things in motion, a specialist who is just as urgent, for Chris and I both being off work, a tremendous support network (including amazing family and friends) and two beautiful healthy girls.

Comic Relief:

At Harvey's. "Cute girls. Are they twins?" It's already started. 2 months and 16 months. I thought the first time we would get asked this Addisyn would at least be one. Rylyn was waving her hands around and shouting and Addy doesn't even know what a hand is yet. The guy did have pretty thick glasses. The girls will be sharing clothes before I know it.

On a walk. Mailbox pictured below. Roped and duct-taped shut with a sign that reads "No flyers please." You could just remove it, the same sign is posted on your front door. I think it made me laugh more than the neighbours that parked a toilet on their lawn with a sign that said "Please don't poop on our grass." Not a word of a lie. You know you're a redneck when...

Chris took the picture on his phone...so it is not the clearest

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